Friday, May 29, 2009

Toys





Finally took a few pictures of my new car.. I like it more and more each day I drive it. It has no turbo, it doesn't corner like it's on rails, but it's exactly what I need right now and I haven't had to put gas in it yet. My Laptop showed up the other day. It's awesome. I forgot the neat feature of laptops where you can actually take it away from your desk and run it off battery power. My old laptop's battery has been dead for so long that I think I had forgotten that. Not sure what I'm going to do with the old laptop once I get my data off it. I've had it since Feb 2003, and it still is running pretty strong. The hinge is completely jacked on it and it's missing a 4 key, but other than that is runs everything I try to do on it well. I might price out how much the parts would be to fix it, or find another Inspiron 8500 that I can salvage the parts from, then give it to someone. Got a replacement Blackberry Storm yesterday. It's nice to have it back and be able to get to my email anywhere, internet anywhere, but this replacement one, already needs to be replaced. Part of the screen doesn't click.. Alos, got a package today from King, he sent me his Playstation 3. I'm trying to figure out how I'm going to use this as I have no TV, but I should be able to get it hooked up to my computer monitor and I'll figure out some way to get sound to my computer speakers aswell. Pretty cool that I have all these toys. They will keep me busy while I'm sitting around healing. I got atleast another 4 weeks of healing, before I can be fitted for a prosthetic, 6 weeks is more likely tho.

Wednesday, May 27, 2009

Forgot Camera

Had another cast change today and I forgot to bring my camera. I want to try to keep a picture log of the healing process of my leg, but my memory failed me. My leg looks really good, it is healing well and shows no signs of infection. Looks alot better than it did last week, which was showing some swelling and bruising. New cast is on and this one is tight. Not sure how that is going to be with pain, but maybe it will be better if my leg isn't moving around in the cast. My pain levels the last few days has been pretty bad. Could be the weather was kinda crappy, rain and clouds. Going to try switching the time's when I take my Oxycontin and up my dosage of Oxycodone for the breakthru pain. I'm hoping this will help because the pain is starting to get to me. Still having alot of pain from the muscles in my leg locking up. The medication I have been given for this so far hasn't worked at all. The only thing that is helping is stretching..

That's all I have for now, hopefully I'll have some updates with pictures soon.

Thursday, May 21, 2009

Xray

Today I had some Xrays done of my leg. Pretty interesting the way the ERTL is done. No pins to hold things in place, just the muscle wrapped around holds it until it heals up.

Wednesday, May 20, 2009

Home and Cast change

Feels good to be home tonight.. Something calming about sitting at my regular computer in the dark, with headphones on listening to music. Oscar conked out on the couch next to me. Even though I'm tired I don't want to sleep yet. Feels like I have been sleeping too much lately at the hotel. Tonight is just a test run to see how I do basically by myself, through the night. Today I had a cast change which I was completely looking forward to. I have been having some crazy pains in my knee/leg/hip lately in relation to being locking in a cast. At times the pain drowns out the pain from the amputation, and they feed off each other. This time pulling the old bandages and padding hurt like a MF. I was holding my breathe and wishing I had taken something before I went in. Last time I was so doped up I didn't feel a thing. This time, I felt hot, warm, sharp pain coming from the stitches and the end of my stump. Pain management has been one of the biggest challenges so far. Unlike most pain I used to get with my old foot, this pain can get away from me and it becomes something I can't control. It's important I stay ahead of the pain. Another thing I noticed when they were cleaning the end of my leg/stump was my mind was placing the nerves in the correct location in relation to my body. When they cleaned part of the skin that was part of the back of my calf and has been wrapped around underneath the stump, I could tell they were touched the middle of the end of the stump. It didn't just feel like they were touching the skin on the back on my calf. With my previous amputation I remember having feelings where I would touch skin and it would feel like I was touching skin 4 inches further out, between my big toe and the one next to it. Phantom pain doesn't seem like it will be as much of a problem this time at all. I still have phantom sensation, the feeling of wanting to bend my ankle down or and itch on my heel by my Achilles tendon. But so far that's about it.

Here are some pictures from the cast change. Things look alot worse than they really are. Mostly because I have bruising now where at last cast change it was before the bruising set in. The stitches are starting to heal and tomorrow when I get an X-ray we'll get to see how the bone bridge is doing. I'm excited to see that.


"Dude your Dell got delayed"


So I ordered a freaking Dell so I would have a laptop to play with during all this time I'm going to have after this surgery. Originally I wanted a Studio 15. I had spec'd it out and was about ready to order. Next morning I went over the machine that I had saved in my favorites and the est. ship date was moved back a full 2 weeks!!! WTF? How do they add 14 days to the build time overnight. So I called and find out what the deal was. Never got an answer but the salesman pointed out another laptop to me that had pretty much everything I was looking for in a laptop, faster processer, faster video card, more memory all by default, not stuff that had to be customized so the est. ship date was much sooner than the Studio 15. I did a bit of research and called him back later that day to place the order (This was on the 8th of May) Est. Ship date, the 21st. I can handle that..
So today Dell was nice enough to email to let me know my order has been delayed. No explaination, no apology, just that if I wanted to cancel I could do so. The new ship date is the 1st of June. Bastards. They got me by the balls literally, cause if I re-order the clock starts over and they will probably do the same shit with the new machine. So basically I have to wait an additional 11 or so days just because. I'd call and complain, but do you really think they care? Problem is, bang for the buck, Dell still makes some of the best laptops out their for what I'm looking for. I could go by an Asus at Best Buy tomorrow, but do I really want a 9lb beast with the words extreme gamer backlit on the lid?

Damn you Dell..

Sunday, May 17, 2009

Narcotics


Percocet and OxyContin are terrible drugs.. Terrible. I am grateful for the pain relief, but I'm so sick of the dizziness, nausea, the constipation, no appetite and in general just being completely out of it. Today I tried taking some Magnesium Citrate to get my system going. Dear lord this stuff tastes terrible. I would describe it as carbonated lemon juice with a ton of salt in it. It made me burp and feel crappy for a good 40 minutes ending in me puking it all up. Fun. Other than this today was a ok day, we went to Cheesemen park for 15 minutes or so, just to get outside and out of this room. It felt really good to be outside and in the sun. I'll have to do this more, maybe once it cools down as it suppose to be in the 90's the next 2 days. I'm looking forward to an appetite and a huge bloody steak.

Saturday, May 16, 2009

Hospital


I'm out of the hospital now, I was too drugged up and in too much pain to post anything while in the hospital so I'm doing it now. It was pretty strange showing up for the surgery, checking in and just the waiting. It seemed surreal. I didn't really get nervous until I was carted into the operating room and saw the big lights and all the surgical tools being layed out. The anethesia knocked me out fast as I don't remember the doctor arriving or even being hooked up to all the equipment. I'm sure I was awake, but have no memory of it. The surgery seemed to go by in the blink of the eye and when I awoke, I really couldn't feel any pain. I was nauseas from the anethesia, but the epidermal kept me pretty pain free. Over the next few days I had some rough times, like when the epidermal basically stopped working and I had to be switched to an ivy drip of deladin, which is an evil drug. It kept my pain manageable, but it suckes. Or when they switched me from the ivy to pain pills and my body burned them off too fast. The pulled the cast off Friday to look at how everything went. Looked real good to me, very clean, some sweeling, but not bad. They cleaned it and recast me and released me. Now I'm staying in a hotel a few blocks from the hospital. I could go home, but this is better, easier for me to shower and get around. More convient for when I do need to go back to the doctor. But I'm looking forward to getting home, where I can hang out with Oscar and relax more. Can't wait until I can get off some of these drugs, they make me feel crazy. I can't think straight, have no appetite, feel dizzy all the time. I'm glad they help with the pain, but the side affects are no fun.

**Update** added a picture from the cast change. Crazy, but it looks good to me.

Monday, May 11, 2009

337 RIP


So I bought a new car today.. I should be super happy/excited, but I'm not. I'm happy about the car, I feel like it was the right thing for me now, but the surgery on the horizon and having to get rid of the best car I've ever had kinda took the wind out it. It was time tho, I really needed to get a car that was automatic and as a bonus, it gets better gas mileage, warranty, 4 doors, and it's damn sexy. No regrets, only looking to the future. A future with Monster, where I don't have a massive caffeine withdrawal headache.

Friday, May 8, 2009

Changed again

The surgery time has been changed again. It's now back to the 12th, but at 10:30, with a 8:30 check in time. This is quite frustrating to me and I let them know this. I might need to write something on my right leg, like "Do not cut me off"

Date Change

Found out today that my surgery date has been changed from the 12th to the 13th. Really has no affect on me, except check in is at 5am, yikes. This might work out better for me because it will give me less time to worry before the day of the surgery, as I'll be out of if sleepy at 5am. I was cleared for surgery yesterday by a physician so for the most part I am completely ready for this to happen. I just have a few more errands to run today and to decide what I'm going to do with my car.

Information

The procedure I'm having done is called a Ertl Osteomyoplastic Lower Extremity Amputation Reconstruction Technique. I'm having it done at St. Luke's Hospital here in Denver by Dr. David Hahn of the Colorado Limb Consultants.
http://www.limbconsultants.com/

A page about the ERTL procedure.
http://www.ertlreconstruction.com/

Another site which shows more info specific to the surgery (has some pictures of procedure so beware)
http://www.bonebridge.com/bonebridge.html

Article in Runners World of a ERTL patient going thru the surgery, he recently ran the New York City Marathon.
http://www.runnersworld.com/article/0,7120,s6-243-297--12959-1-1X2X3X4X5X6X7X8X9X10X11X12X13X14-15,00.html

Christopher Jones will be my CPO.
http://www.reboundprx.com/

I am working with this group for rehab and everything else.
http://www.amprehab.com/

4 days in the hospital, 5 weeks if everything heals well until I will have a cast made for my prosthetic and hopefully I will be up and walking by or before week 6. No idea how long it will take before I will be able to walk as well as I am now.

Sunday, May 3, 2009

Beginning

Jan 20th, 1990

Warm days meant mischief.

Riding my bike around town with friends we stumbled across a wall of ice. It must have begun as a icicle, but it had grown all the way to the ground, which in my mind seems like 12+ feet. Once it touched the earth, it began to grow thicker, wider. It was atleast 18 inches thick at it's narrowest part. You could walk between it and the wall. So being typical kids, we figured the best thing to do was destroy it. We found some rocks and began breaking off icicles on the edge of it. It didn't seem like we could have any affect on something so massive, even with rocks the size of grapefruit. We were taking turns, each excited that our throw might be the one to bring down a chunk of ice of considerable size. It was my turn and I threw a large rock. It bounced off only leaving a white star where it had hit, and tumbled back to my feet. I picked it up and took my friends turn. This time I got a run at it, took a few steps to help my throw. Upon the rock hitting, I heard a crack and saw the wall of ice move. Defying logic, it didn't fall straight down, it teetered on it's base and fell towards me as tree would fall. I turned to run and slipped to my knees. Pulling myself up I took 3 strides, left, right, left and I dove. I remember a flash of white across my vision and the feeling of sliding across the dirt and snow, being pushed forward by the ice. I pulled myself up, but I knew something was wrong. I felt fire coming from my left foot. As I stood up on one leg, I stated to my friends half jokingly "my foot was history". My shoe was about to come off, so I slipped it off at the heel. I saw bone, blueish white bone. My vision narrowed and I had to sit. I couldn't look at it, I couldn't look down. My friends were in shock, standing with their mouths open, looking at me. Neither of them reacted as the pain started to increase. I guess I had been hurt enough times in my life to know that I needed help. I told my friends to go get help, but they didn't respond. I had to yell at them a few times to get them so snap out of their shock, to find someplace to call 911. I remember a lady came out and sat with me until the ambulance arrived. Holding me and telling me it would be ok. I don't remember her face or her name, just that she was there. In the ER I was upset because they had to cut my pants off, and I liked em. I remember the x-rays, but that is about it. The doctor set my bones and took a vein out of my right arm to try to repair arterial damage to my foot. The next week we waited, seeing if circulation was working, seeing if things would heal. But it wasn't, so I was flown to Salt Lake City. An exploratory surgery there revealed the bone was dying and the doctors were concerned about gangrene. I remember a few choices, save as much as possible or amputate higher. Cut the nerves or to leave them. For whatever the reasons I/we choose to save as much as possible and to leave the nerves intact so I would have some feeling. The next day I was brought into surgery and the partial foot amputation was done. Part of my lat muscle from my right side was removed to protect the exposed bones and skin grafts were taken from my right thigh. I remember waking up and seeing I no longer had a foot.

My memory of all this is fuzzy, like part of a dream that I can't fully bring to you conscious mind. I'm not sure how much of all of it I don't remember as a result from the pain medication or how much of it my mind decided it was best to forget. All I know was my life was changed, I was changed.

Now I am choosing to have another amputation. This path will not be easy, but I know that in the end I will be much better off. 19 years of pain from my foot and now my back have pushed me to this point. I want to eventually get to where I don't have pain on a daily basis and where the activities in my life I want to pursue, will not be so far out of my reach.